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Pride month is a time of celebration, activism, and inclusion, but it can be tough to take part when you live with a chronic illness. There is such a wide range of chronic illnesses that an individual can suffer from and they can make it difficult to have the energy or ability to take part in events.
Even if symptoms are managed well enough that day to attend an event, accessibility within queer spaces can be lacking (to say the least). While we are taking strides in the right direction, there’s still a lot of work to be done so that disabled people feel welcomed and able to access pride events.
In the meantime, if you have a chronic illness there are ways you can strike a balance and take part in pride. You deserve to be involved just as much as anyone else!
Express Your Needs
Able-bodied friends might find it difficult to understand what you need and what you’re experiencing if you don’t explain it to them (I don’t think anyone can fully understand a chronic illness unless they live with it). So, if you’ll be attending pride events with friends, family, or a carer, speak up and make them aware of your needs. You can chat before you go about what you need so they can better support you.
There are lots of things loved ones can do to help. It might be as simple as them going with you to find a quiet space when you need to take a break, or holding your hand to reassure you. It may be that your friends need to take it a bit slower so that you can keep up. If you have access needs, chat with your friends beforehand so they can help you find an accessible event that you can all attend together.
It can be hard to ask those around you for help, but it can make your life a lot easier when you do. There’s no shame in asking for help – you are not a burden!
Use Your Mobility Aids
If you have access to mobility aids and they help you, then use them. There’s a lot of stigma around mobility aids, especially for younger people. This can make it difficult to overcome internalized ableism. But fundamentally, mobility aids are there to make you more mobile and improve your quality of life!
Some people have used aids for years because symptoms fluctuate from day to day and some use a number of different aids depending on what their needs are each day. Sometimes they need to use a wheelchair, sometimes a walker, and other times a stick. A lot of people love their aids and feel privileged to have access to them. They help you live your best life! Yet quite often other people with chronic illnesses say they struggle to use aids because they’re worried about what others might think or because they don’t feel they’re ‘ill’ enough to use them.
If using an aid could help you and you can access it, then you can use it! You don’t need permission from anyone else and it doesn’t matter what others think. Their purpose is to help you live the life you want to live, so use that aid if it allows you to get out there and enjoy pride!
Find Accessible Events
Friends at a bar.
Although it shouldn’t have to be you that does the work to figure out if pride events are accessible, at the moment it falls to us for the most part. So, it’s best to do some research. If you have access needs, it’s best to email, message, or call event organizers to make sure you can access events. If it’s easier for you, you can make an email template so you can just copy and paste if there are a few events you want to contact.
If you’ve had any treatment for your chronic illness, you’ve likely heard of ‘pacing’. Essentially, it means pacing your activities, so that you’re taking rests and not overdoing things. This helps to prevent a flare-up of symptoms.
Pacing yourself during pride is important so you can take part without aggravating your symptoms too much. For example, you might only choose a couple of events that mean the most to you to take part in. You might schedule rests during the day or allocate a rest day after you’ve attended an event. At the end of the day, we’re all individuals and you know your body and how it responds to activity best.
Keep Up With Self-Care Practices
Self-care is anything you do to look after your physical or mental health, like sleeping on a regular schedule and eating well. When there’s lots of excitement going on and that party atmosphere, you might find yourself swept up in it and forget to keep up with self-care. Unfortunately, unlike able-bodied people, we tend not to be able to cope as well with this and it can take a toll on our bodies.
So, do your best to keep up with self-care even when you’re attending an event. Make sure you’re eating, staying hydrated (especially if you’re drinking alcohol), and getting some rest. Keep up with your medications and any treatments you use (It's helpful to set reminders).
Have a To-Go Bag
A to-go bag is a bag that has all the supplies you might need to help you manage your illness while you’re out. You have it ready packed so you can just grab it and take it with you wherever you go, that way you don’t need to worry about forgetting anything.
A to-go bag helps you be prepared, whether you’re attending pride or just going out to enjoy the sun. What you need in your to-go bag will vary depending on your illness and your symptoms, but we’ve included a list of examples below to give you some ideas:
- A set of your medications
- A list of numbers people to call if you need help
- A fan to keep you cool (handy if your symptoms are aggravated by heat)
- Some gloves, warm socks, a hat, or scarf to keep you warm (handy if you struggle with circulation issues)
- A bottle of water in case you can’t find a place to get a drink
- Some snacks (good if you struggle with blood sugar issues or if you need to keep your energy up)
- A pulse oximeter (if you need to keep an eye on your heart rate and blood oxygen levels)
- Noise-canceling headphones or earplugs (useful if you struggle with sensory issues)
Get Involved Online
There are often pride events you can get involved in online. Since Covid, there’s been an increase in pride celebrations being streamed live or done via group call, which has made pride more accessible for people who may struggle to attend in person. Hopefully, these online events will continue so that more of us can be included.
You can also get involved in raising awareness and campaigning for better rights for our community by sharing petitions, speaking up on social media, and sharing your own experiences.
Say No When You Need To
Women with pride socks
Even though it can be difficult to turn down an invite when you really want to take part, sometimes when you live with a chronic illness you have to say no. Your health comes first so don’t be afraid to set a boundary and stay home if you need to.
We know it can be frustrating and feel isolating when you aren’t able to be involved, especially when you see other people out enjoying pride with their friends on social media. But please know that you aren’t alone: there are lots of other chronically ill queers out there just like you.
For many, finding the chronic illness community within the LGBTQ+ community can be so validating and reassuring (there are lots of us on social media). You are valid and your needs matter. In the future, hopefully, pride will be more accessible to all of us.
WASHINGTON, D.C. — The 2022 ASANA Softball World Series will bring together nearly 70 of the most competitive adult softball teams in the country to Washington, D.C. August 16 – 20. The tournament, which welcomes LGBTQ cisgender women, transgender men, transgender women, and non-binary people and their allies, will bring together top teams from nearly 30 cities across the country. The event is being welcomed to the D.C. area by the Chesapeake & Potomac Softball League (CAPS), the DC area’s LGBTQ softball league, members of which are serving as the hosting committee for the tournament.
“We are very excited to be heading to the D.C. area this year for the 2022 ASANA Softball World Series,” said ASANA Commissioner Angela Smith. “The Host Committee has been fantastic to work with to make sure this event is one of our best ever. I know all of our teams are looking forward to experiencing all there is to do and see in the area and playing some incredible softball along the way.”
“Having the bid to host the ASANA World Series before the pandemic, the DC community was eagerly anticipating the event,” said Tony Mace, Co-Chair of the DC Host Committee. “Little did we know that the world would shut down for over a year, but our Host City committee never stopped working to bring the best player experience for ASANA athletes and families. After three years in the making, the Host City committee and I are looking forward to welcoming the first players who arrive.”
For the fourth consecutive year, a selection of the tournament games, including all championship games, will be live-streamed in partnership with the Cloud Sports Network (CSN) through the ASANA Facebook page and YouTube channel. But, for the first time ever, those games will also be available to stream for free on OutVoices.us through an exclusive partnership agreement.
“Typically the ASANA Softball World Series will get anywhere from 40,000 to 50,000 unique viewers each year just from the ASANA social media channels,” said Roman Jimenez. “That’s an already large and highly targeted audience who want to watch LGBTQ cis women, trans men, trans women, and non-binary softball players compete at the highest level. To be able to increase that audience by a factor of 3 or 4 as a result of our partnership with OutVoices.us is an incredible opportunity for a much larger portion of our community to be exposed to competitive sports by and for our community and our allies.”
For those who haven’t seen their coverage before, Jimenez cautions against having low expectations. “We’re not just a lone cell camera jury-rigged to a backstop,” he said. “We have multiple cameras, on-field microphones, on-screen graphics, instant replay, and professional broadcasters describing the action as it’s unfolding. We are as close to the Queer version of ESPN as you can get.”
The Cloud Sports broadcast team includes as its analyst ASANA Hall of Famer Rosalyn Bugg, who in addition to having competed as both a coach and player at the ASANA Softball World Series, is also the Commissioner of the Women’s + division of the Greater Los Angeles Softball Association (GLASA) and runs that division’s tournament at the Sin City Classic, the largest annual LGBTQ sporting event in the world. In 2022, Bugg was also inducted into the GLASA Hall of Fame. Describing the action play-by-play will be Jimenez, a veteran broadcaster and softball player, and coach who has helmed various championship teams for over 25 years. In 2019 Jimenez was inducted into the Hall of Fame in his hometown LGBTQ softball league in San Diego, America’s Finest City Softball League (AFCSL). In addition, both Bugg and Jimenez are championship-certified USA Softball umpires.
“Both Roman and I know the game,” said Bugg, “and we work great together as a team.”
As part of the 2021 ASANA Softball World Series broadcast, Bugg introduced player shout-outs to family members and friends who were watching the broadcast. This created an incredibly engaging atmosphere on the ASANA social platforms.
“I love highlighting not only the action on the field but also the players responsible for it,” Bugg said. “This tournament is all about the players and telling their stories is a privilege we take very seriously.”
The ASANA Softball World Series will consist of four divisions. The B Division is the highest level of skill and often includes players with a history of playing the fast-pitch version of the sport in high school or college level. The C Division includes players who, while highly skilled, aren’t quite at the same level as the B Division-caliber of players, or whose skills may have slowed with age. The D and E Divisions are for both newer players and for those who may have aged out of the higher divisions. Since many players have been playing in ASANA-affiliated associations for 20+ years, many will have experienced every division of play before settling into where their skills are currently best suited.
In total, nearly 3,000 athletes will be headed to D.C. for this year’s event and as you might guess, in addition to hundreds of volunteers, it takes a lot of money to make an event like the 2022 ASANA Softball World Series even possible. For that, both ASANA and the CAPS Host Committee have been engaging with sponsors to help offset costs.
“We want to thank our sponsors on both the national and local levels. Without them we couldn’t provide the experience we do for our players, their families, and for our fans,” said Smith. “We look forward to being able to share these experiences with them and with our live-streaming audience on our social channels and right here on OutVoices.us.”
Coverage begins Thursday, August 25th with early tournament play, continuing during “Elimination Friday” on August 26th all the way through to “Championship Saturday” on August 27th, when all four divisional championships will be broadcast. Stay tuned to this page for updates on game time and team announcements and to watch the games live.
ASANA — Amateur Sports Alliance of North America — was created in 2007 as a non-profit organization dedicated to the promotion of amateur athletics for all persons regardless of gender, age, race, creed, religion, national origin, or sexual orientation with a special emphasis on the participation of women, trans men, trans women, non-binary and agendered people.
The organization currently has 25 member cities across the United States and hosts the annual ASANA Softball World Series which brings together over 70 teams for a 4-day championship tournament. The World Series has four divisions to provide varying competitive levels of play, with "B" being the most skilled and the "E" supporting the most recreational.
To connect with stories involving gay, lesbian, bisexual, transgender, or queer characters, you don't have to be a member of the LGBTQ+ community yourself. These new lesbian romance novels are a must-read for everyone, whether you're hoping to improve your ally skills or are just seeking a really awesome book. Check out our book recommendations now since they are DEFINITELY worth your time.
The One Woman By Laura MayThe One WomanPhoto courtesy of Amazon
The One Woman, a New sapphic romance novel by Laura May. Julie's life and her relationship with her partner Mark are routine in every way. That is until she meets Ann. Web developer Ann is a kind and beautiful person. It is impossible to deny Julie's feelings for Ann. The spark is genuine as their present and past converge in Barcelona. Julie has to choose between her love for Ann and her devotion to Mark when tragedy strikes. Will true love last the distance? You’ll find out in The One Woman.
Count Your Lucky Stars by Alexandria Bellefleur
Count Your Lucky Stars
Photo courtesy of Amazon
Margot receives the spotlight in Bellefleur's third book Written in the Stars even though she has no intention of entering a committed relationship herself. Margot has been experiencing severe fifth wheel vibes lately. But everything gets mixed up when she runs with her first love, Olivia, who is starting over in Seattle after her divorce. This is especially true when Margot gives Olivia a much-needed place to crash. Can Margot trust the girl who once broke her heart again?
No Rings Attached by Rachel Lacey
No Rings Attached
Photo courtesy of Amazon
Bookseller Lia only made up having a girlfriend to get her mother to stop berating her, but now that her brother's wedding is quickly approaching, she is forced to stick to her narrative. Her best friend introduces her to Grace, who recently relocated to London, the location of the wedding, and accepts Lia's invitation to go on a date with her. But a series of mishaps (just one bed! ), especially when it comes time to say goodbye and they discover they're not at all prepared to do that, make it a weekend full of unpleasantness.
In the Event of Love by Courtney Kae
In the Event of Love
Photo courtesy of Amazon
Morgan will have to take on an event in the small hometown she never wanted to see again in order to save her budding publicity career when an awful catastrophe threatens to destroy everything. The girl who crushed her heart after their first and only kiss, Rachel, is still in Fern Falls and has transformed into a seductive lumberjack, which only serves to worsen the situation. Morgan is the ideal candidate to help Rachel's family's tree farm since she can demonstrate that she is still at the top of her public relations game by organizing the world's greatest fundraiser.
Mistakes Were Made by Meryl Wilsner
Mistakes Were Made
Photo courtesy of Amazon
With a sophomore that mocks the slow-burning face of their debut by opening with a hookup that'll have you fanning your face for days, Wilsner displays their serious romance range. The said connection involves Cassie, a senior in college, and Erin, an attractive older woman she meets at a pub and who Cassie soon discovers is the mother of one of her best friends. The delicate balancing act of keeping that night a secret while giving in to the sexiest chemistry either of them has ever felt begins, which is made much more difficult by the fact that they are going on a full break together. Can they say goodbye when their vacation comes to an end, or is there something here that they simply cannot ignore, no matter the price?
I Kissed Shara Wheeler by Casey McQuiston
I Kissed Shara Wheeler
Photo courtesy of Amazon
Being named valedictorian of her high school has been Chloe Green's main motivation since she relocated from Southern California to a rural Alabama town. But when Shara Wheeler, her competitor for valedictorian, kisses her a month before graduation, Chloe is left looking for explanations—and Shara herself. Chloe will have to work with Shara's quarterback boyfriend and her bad-boy neighbor to decipher the cryptic notes they have each received in order to find out where she has gone. Can Shara be located and brought back in time for graduation?
Diane Hayes is an online writer and editor.
Finding suitable healthcare can be difficult for everyone, but those in the LGBTQ+ community have an extra hurdle to contend with: finding a healthcare practitioner who is not only supportive of LGBTQ+ folk but also experienced in treatments that are more likely to be required by members of the community.
Everyone deserves to be able to access healthcare that suits them, so why is this often so hard for LGBTQ+ people to find?
Seven out of ten LGBTQ patients report having negative experiences while accessing healthcare, and this is completely unsurprising when you consider the shortage of healthcare practitioners who are well-versed in issues that are overrepresented in, or even exclusive to, the LGBTQ+ community.
Hormone replacement therapy, experience treating intersex patients, gender affirmation surgery, and HIV treatment and prevention are only a handful of things that a professional working closely with members of the LGBTQ+community should be experienced in and comfortable with, but how many are?
Unless your healthcare practitioner takes a particular interest in these areas or has significant experience in dealing with them, it’s likely that they have only spent a measly five hours studying LGBTQ+ issues as part of their medical training. This can create an unfortunate catch-22 situation where doctors do not feel comfortable treating these conditions, leading to avoidance and lack of opportunity to build up their knowledge and real-world experience.
Under-representation Of LGBTQ People In The Medical Community
While more comprehensive training would go some way to increasing access to high-quality healthcare for LGBTQ people, studying can only go so far; those with lived experience of the issues facing the LGBTQ+ community can offer insights and empathy that those outside the community cannot, despite their best efforts.
Stanford University conducted a study that found that 30 percent of medical students who were part of the LGBTQ+ community hid their sexual or gender identity. In addition, around 40 percent of medical students who self-identified as “not heterosexual” said that they were wary of facing discrimination. If we extrapolate this to healthcare professionals in the workplace, it’s not surprising that it can be hard for LGBTQ patients to find a practitioner who is also openly part of the community.
Encouraging more LGBTQ people to enter healthcare professions, and ensuring that those who are already working in healthcare feel able to embrace their sexuality or gender identity, are key to helping LGBTQ patients find healthcare that meets their needs.
Bias And Stereotypes
Whether intentional or subconscious, bias and harmful stereotypes are endemic throughout the medical community. “For example, from the moment you enter the waiting room and are handed paperwork asking your gender, with only male and female boxes available to tick, you can be made to feel unwelcome, misunderstood, and alienated,” explains Benita Martines, a journalist at OXEssays and Paperfellows.
Due to previous negative experiences, LGBTQ people can feel reluctant to offer information about their sexual orientation or gender to a healthcare provider. Equally, professionals can be wary of asking for this information in case it offends the patient. As this information can have a very real impact on medical decisions, it’s crucial that the medical community get comfortable with discussing these issues in a way that includes and empowers LGBTQ folk.
Lack of Transgender Care
“The National Center for Transgender Equality and the National Gay and Lesbian Task Force recently conducted a survey which revealed that a shocking 19 percent of trans and gender non-conforming people have been refused medical care,” explains Mark Dobbins, writer at Boomessays and UKWritings.
In addition, transphobic terminology is rife in the medical community and is often used without consideration of how unwelcome it can make trans patients feel. Worryingly, the same survey found that half of the respondents have had to explain some transgender-specific medical terms to healthcare professionals.
Although the healthcare industry has a long way to go in becoming inclusive, accessible, and supportive to members of the LGBTQ+ community, progress is being made. For example, John Hopkins University School of Medicine has updated its curriculum to help its graduates care for a more diverse range of patients.
In the meantime, finding a healthcare provider who is understanding and supportive of your needs can feel like an impossible task, but don’t give up; everyone deserves good healthcare, and there are some excellent LGBTQ+-friendly practitioners out there.
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